Sunday, March 20, 2011
An Evolution of Love
Your book
Your book
I just finished reading the story about Bob Sykes and was overwhelmed with relief that I am not the only one living with a spouse that is suffering from FTD, in addition to ALS. Last July my husband (age 45) was officially diagnosed with ALS following a number of tests (similar to FTD testing) and when I started to research ALS on the internet, I was overcome with relief when I learned that my husband's strange behavior that he had been exhibiting for quite some time, was due to a cognitive component of ALS known as FTD. Since last summer, it seems my husband's FTD has progressed more noticeably then his physical deterioration with ALS. Because of his cognitive decline, he "retired" from his career of 25+ years with BMW automobiles and now spends a few hours each day volunteering in the library at my daughter's elementary school. Other than his volunteering, he does not have a daily routine with the exception of emptying the household trash cans!
Amy
An Evolution of Love
Request to quote a passage of your book
Hello Michelle,
I recently read your wonderful book about Bob which has many vivid passages which gives the reader a sense of the journey of your family with Bob’s illness.
I work as a counselor for Alzheimer’s Australia Vic in the early intervention program and for the past few years we run an education, information and support 6 week program specifically for people with Younger Onset dementia. There are usually a mixture of people with Alzheimers and Fronto temporal dementia and this type of illness is reported to be the most challenging for families. I was therefore very interested and at the same time saddened to read about your experiences particularly with appropriate care facilities.
For our February newsletter, I am planning to review your book which will be in our library soon, and I am seeking permission to use a few quotations for the review – if you can let me know if you are agreeable to that as soon as you can as I need to send the article in by early next week.
Hope to hear from you soon
Regards
Felicity
I loved the book, I was reading my life with my husband
A note of Thanks to Marie and Michelle
Just finished your book...
to be written, but I think it will help others who are or will be on this same road. Bravo for a job well done...
With Love
Christine